At a Glance - Rare diseases – strengthening EU action - 19-11-2025
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Rare diseases, often underdiagnosed and overlooked, affect over 36 million people in the EU and around 300 million worldwide. The EU supports numerous initiatives to improve diagnosis, care, data sharing and research. The European Parliament is advocating foAt a Glance - Rare diseases – strengthening EU action - 19-11-2025
Rare diseases, often underdiagnosed and overlooked, affect over 36 million people in the EU and around 300 million worldwide. The EU supports numerous initiatives to improve diagnosis, care, data sharing and research. The European Parliament is advocating for a comprehensive action plan at EU level to address persistent challenges such as fragmented research, lengthy diagnosis times, limited access to innovative treatment, and the overall quality of life for patients. Source : © European Union, 2025 - EP














