'Relief, gratitude and hope': Family hits $2.4m crowdfunding goal to save baby from rare genetic disorder
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The parents of a 10-month-old baby born with a rare genetic disease were overwhelmed with emotion on Friday (March 27), having secured the $2.4million needed for a one-time gene therapy which is not covered by insurance or government subsidies. Speaking'Relief, gratitude and hope': Family hits $2.4m crowdfunding goal to save baby from rare genetic disorder
The parents of a 10-month-old baby born with a rare genetic disease were overwhelmed with emotion on Friday (March 27), having secured the $2.4million needed for a one-time gene therapy which is not covered by insurance or government subsidies. Speaking to AsiaOne, the boy's mother Norhaziqah Rosli, 35, said, «Reaching the target felt surreal for our family. »There were so many moments along the way where we didn’t know if we would make it, so when we finally did, it was overwhelming in the most emotional way. «We felt a deep sense of relief, gratitude, and hope.»Norhaziqah and her husband Rahman Rahim, 37, started their crowdfunding campaign on Ray of Hope with the help of a volunteer on Jan 5 for their fourth child Faziq, who was born with Spinal Muscular Atrophy (SMA) which causes muscles to weaken over time.[[nid:732120]] Read more
