'A chance we once only dreamed of': Baby with rare genetic disorder successfully receives $2.4m treatment
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After successfully raising the $2.4 million needed to save their child from a rare genetic disorder, baby Faziq finally received treatment last Wednesday (April 22). His mother, 35-year-old Norhaziqah Rosli told AsiaOne on Monday (April 27) that Faziq'A chance we once only dreamed of': Baby with rare genetic disorder successfully receives $2.4m treatment
After successfully raising the $2.4 million needed to save their child from a rare genetic disorder, baby Faziq finally received treatment last Wednesday (April 22). His mother, 35-year-old Norhaziqah Rosli told AsiaOne on Monday (April 27) that Faziq — who was born with Spinal Muscular Atrophy (SMA) which causes muscles to weaken over time — responded well to the one-time Zolgensma gene therapy and is being closely monitored as he recovers. She shared that Faziq is currently back home but still has to go for follow-up visits weekly at the hospital to ensure everything is progressing well.«As a family, we felt incredibly grateful and relieved. It has been a long and emotional journey, and we're truly thankful that Faziq has been given a chance we once only dreamed of,» added Norhaziqah. Read more
