Rare diseases – defined as diseases that affect no more than one person in 2 000 – currently impact between 30 and 35 million EU citizens. Limited patient volume hinders research on these diseases, to the detriment of understanding of their biology, recruitment to clinical trials and survival rates. Real-time sharing of primary health data within and between rare disease healthcare centres and across Member States is feasible but there are obstacles. This report focuses on childhood cancer as a rare disease prototype, addressing volume challenges by reviewing cooperative structures, exploring attitudes towards data sharing, and presenting policy options for multi-country collaboration. Interviews show support for collaboration among rare disease healthcare centres, and for sharing medical files and expertise. The policy options proposed seek to promote research and expertise-building for the benefit of rare disease patients. Source : © European Union, 2024 - EP

This study analyses the absorption rates of the EU Cohesion Policy funds in 2014-2020 over time across funds (ERDF, ESF, CF, and REACT-EU), and across Member States and regions. It also provides a comparison with 2007-2013 absorption. A summary of absorption drivers, obstacles and undertaken solutions is presented based on the relevant literature and the findings of case studies. Conclusions and recommendations on improving the absorption of funds are set out. Source : © European Union, 2024 - EP

The European Central Bank's operational framework is a set of tools it uses to control the amount of money flowing through the economy in order to keep prices stable. The calibration of those tools determines how quickly and strongly the central bank can steer short-term interest rates and ultimately how monetary policy affects economic output and inflation. The operational framework concerns how a monetary decision is implemented, not what the decision is. Over the last 10 years, the ECB has introduced several new policy tools, which has led to a significant increase in excess liquidity – that is, reserves held by banks beyond minimum requirements. In the course of recent monetary tightening efforts, the ECB has started to shrink its balance sheet, and excess liquidity has fallen by about €1.2 trillion. The new operational framework is a reaction to ongoing changes in the liquidity environment, from a situation of abundant excess liquidity to one of less ample liquidity. To this end, the ECB has effectively made a small adjustment to the width of the corridor between two policy rates, which will be implemented as of September 2024. In addition, two new instruments will be added to the ECB monetary policy toolbox: a structural portfolio of assets, and long-term refinancing operations. No specific details have been provided on the new tools in terms of technical features or the timing of their introduction. Source : © European Union, 2024 - EP

À l'heure du bilan de sa première année de Gouvernance, le président Moetai Brotherson a annoncé que le système de bourses serait modifié et élargi pour bénéficier à davantage d'étudiants. Une bonne nouvelle car le montant de l'aide serait de 20 000 Fcfp en plus des 40 000 Fcp perçus actuellement sur les 10 mois de vie étudiante. Un bémol pourtant : cette aide ne concernerait que les étudiants boursiers de l'université et certaines filières...

Plus d'une centaine de Polynésiens sont actuellement bloqués en Calédonie, et une trentaine de Calédoniens à Tahiti. Moetai Brotherson, en déplacement à Singapour, a annoncé la mise en place d'une plateforme pour que les personnes concernées puissent s'enregistrer. Ces listes seront ensuite communiquées aux représentants de l'État. En attendant, les locaux bloqués sur l'archipel s'impatientent.

This infographic provides an insight into the economic performance of the United Kingdom compared with the European Union (EU) and looks at the trade dynamics between them. United Kingdom’s GDP per capita at the beginning of the series was significantly higher than the EU27 average. After the COVID-19 pandemic, the GDP per capita at PPP between the EU and the United Kingdom took converging directions. The exchange rate between the Pound Sterling and the Euro stabilized at approximately 0.9 after the 2016 increase. The inflation rate increased with similar trends in both the United Kingdom and the EU, but in the latter, the rate decreased more rapidly, reaching 6.3% in 2023. The EU is the leading trade partner for the United Kingdom, and their imports and exports are mainly composed of the exchange of mechanical appliances, vehicles and aircraft, and energy components. For the United Kingdom, the EU is its main trade partner, accounting for 51.8% of its total trade in goods (exports plus imports). Source : © European Union, 2024 - EP

According to the Flash Eurobarometer 528 survey, released in December 2023, 81 % of Europeans believe that foreign interference in our democratic systems is a serious problem that needs to be addressed. The current geopolitical tensions highlight the following dilemma: while international cooperation is required to tackle global challenges such as climate change, including the participation of third countries in the EU debate, such activities also carry the risk of foreign interference in EU policymaking, which can be defined as the harnessing of EU policy proceedings through coercive, covert or deceptive means. On 12 December 2023, the Commission published the defence of democracy package, which includes a proposal for a directive establishing harmonised requirements on transparency of interest representation carried out on behalf of third countries, as well as two proposals for Council recommendations, one on inclusive and resilient electoral processes in the Union, and one on promoting the engagement of citizens and civil society organisations in public policymaking. The majority of Member States have already adopted legislative or non-legislative measures to regulate interest representation activities in general, with several of them having also established specific registers. This proposal is about ensuring the transparency of interest representation activities geared towards influencing policymaking in the EU as a whole, while also facilitating the exercise of such activities across the single market. First edition. The 'EU Legislation in Progress' briefings are updated at key stages throughout the legislative procedure. Source : © European Union, 2024 - EP

Qu'on soit étudiant ou salarié, le mois de mai est toujours apprécié pour ses jours fériés. En 2024, il en compte quatre, dont ce lundi de Pentecôte. En revanche, pour les quelque 500 commerçants de la ville, ces jours fériés sont synonymes de baisse de chiffre d’affaires...

L'aéroport restera fermé au moins jusqu'au 23 mai. Le gouvernement promet dans son point presse du jour de reconstruire un pays sinistré. Les gendarmes poursuivent les opérations contre les émeutiers. Un nouveau conseil de défense est convoqué par le président de la République cette nuit, à Paris.

Tehea Fichaux, aussi appelée Mamie Propre, c’est la dame aux cheveux courts que vous croisez souvent au bord de la route, en train de ramasser les pehu, début Paea. D’abord critiquée puis félicitée, rien ne l’a freiné. Elle nettoie inlassablement les rues de sa commune. Rencontre.

C’est un métier dont on parle peu : homme assistant. Il joue pourtant un rôle essentiel dans les concours canins. Un métier qui passionne Ruarii Mataoa, le seul Polynésien dans le Pacifique à être diplômé de niveau 2.

Suite aux nombreux vols d’ananas subis par les agriculteurs de l’île sœur depuis des années, une équipe de la nouvelle brigade territoriale de Moorea organise désormais des patrouilles dans les champs. Objectif : lutter contre ces vols à répétition. La première ronde composée de deux gendarmes a eu lieu samedi 18 mai.

Le chanteur Raimana Bareille était l'invité de notre rubrique Te Hono Rahua, samedi 18 mai. Il est revenu sur les événements organisés par son groupe, Pepena, qui prévoit de chanter en soutien à la Calédonie.

Chaque année, 17 cas sont recensés en moyenne. Le cancer de la peau n’est pas le plus répandu en Polynésie mais il progresse. Samedi 18 mai, l'institut du cancer a organisé une journée dépistage au centre de la mère et de l'enfant à Pirae. 65 personnes ont pu consulter un dermatologue.

Le marathon de la Terre des hommes s'est déroulé samedi 18 mai à Hiva Oa, aux Marquises. Damien Troquenet y était. L'athlète a remporté l'épreuve en individuel.

Ils menacent de démissionner sous dix jours. Les 26 chefs de service du CHPF réclament 500 millions de francs pacifiques pour le recrutement de personnels et 700 millions pour combler les besoins matériels. Le ministère de la santé promet 1,7 milliard pour cela et 1,9 milliard xpf pour le paiement des dettes.

Après cinq jours de violentes émeutes, la Nouvelle-Calédonie vit une situation extrêmement tendue au niveau sanitaire et alimentaire notamment. La solidarité s'organise à Tahiti. Jeudi soir, un appel aux dons a été lancé à l'initiative d’Éric Malmezac. Vendredi matin, les premiers dons sont arrivés à Fare Ute.

La Nouvelle-Calédonie vient de connaître plusieurs nuits d'émeutes suite à l'adoption à l'Assemblée Nationale de la réforme du corps électoral. Le territoire avait tourné la page de la violence avec les accords de Matignon en 1988 et de Nouméa en 1998. Retour sur 40 ans d'histoire avec la chronologie des événements ; c'est le dossier de l'hebdo Outre-mer du 17 mai 2024 diffusé sur France 24.

Si vous avez entendu des coups de canon, vendredi 17 mai, vers 12h, ne vous inquiétez pas. Il s'agissait d'une répétition des tirs au canon pour préparer l'accueil réservé au patrouilleur Teriieroo a Teriierooiterai, le 23 mai prochain.

La Nouvelle-Calédonie et surtout Nouméa et son agglomération sont le théâtre de violentes émeutes depuis cinq jours. Le procureur fait le point sur leur traitement judiciaire. D'importants renforts sont arrivés. La compagnie Aircalin a annulé tous ses vols jusqu'à mardi prochain. La pénurie alimentaire guette.

Un an après les élections territoriales, Moetai Brotherson revient sur sa première année à la tête du gouvernement. Le président du Pays répondra en direct aux questions des auditeurs ce vendredi 17 mai à partir de 06h30, accompagné de nos journalistes Carlos Natua et Ibrahim Ahmed-Hazi

Un an après les élections territoriales, Moetai Brotherson revient sur sa première année à la tête du gouvernement. Le président du Pays répondra en direct aux questions des auditeurs ce vendredi 17 mai à partir de 06h30, accompagné de nos journalistes Carlos Natua et Ibrahim Ahmed-Hazi

The recast Energy Performance of Building Directive (EPBD) has been designed to accelerate building renovation rates, reduce energy consumption, and promote the uptake of renewable energy in buildings. These measures should help the EU reach its target of a net 55 % reduction in greenhouse gas (GHG) emissions by 2030, as a stepping stone towards achieving climate neutrality by 2050. Source : © European Union, 2024 - EP

The EU defence industry is characterised by economic and technological components that are important factors for Europe’s industrial competitiveness. The European Defence Agency supports Member States in improving their defence capabilities and contributes to the development of their defence industry. The sector has recently decided to address some of its main challenges, including market fragmentation and low spending levels, by reinforcing common procurement and enhancing defence expenditure. Source : © European Union, 2024 - EP

European territorial cooperation (ETC) is the goal of cohesion policy that aims to solve problems across borders and to jointly develop the potential of diverse territories. Cooperation actions are supported by the European Regional Development Fund (ERDF) through three key components: cross-border cooperation, transnational cooperation and interregional cooperation. Source : © European Union, 2024 - EP

EU energy policy is based on the principles of decarbonisation, competitiveness, security of supply and sustainability. Its objectives include ensuring the functioning of the energy market and a secure energy supply within the EU, as well as promoting energy efficiency and savings, the development of renewable energies and the interconnection of energy networks. A variety of measures aiming to achieve a complete Energy Union is at the core of the EU’s energy policy. Source : © European Union, 2024 - EP

Following the adoption of various items of EU legislation, both international and cabotage road haulage and passenger transport services have been gradually liberalised. Source : © European Union, 2024 - EP

Since December 2009, the Union has competence to carry out actions to support, coordinate or supplement the actions of the Member States in tourism policy. Although the 2021-2027 multiannual financial framework does not provide for a separate budget line for tourism policy, during the 2022-2023 period the budget for tourism activities was earmarked under the single market programme. Source : © European Union, 2024 - EP

Les contrôleurs aériens polynésiens sont en grève depuis jeudi 16 mai au matin. D’après la représentante de l’union syndicale de l’Aviation civile affiliée à la CGT, Tiarama Lehartel, la grève n’est pas effectuée pour une question d’argent, mais pour la reconnaissance d’une activité qui justifie le recrutement de plus de contrôleurs aériens et de plus de moyens.

Après sa victoire contre Samoa samedi, l'AS Pirae devait jouer son second match de la ligue des champions de l'Océanie mercredi, contre le Vanuatu. La rencontre est décalée à ce jeudi soir, à cause de vols annulés. Plusieurs matchs ont été reprogrammés et les Calédoniens sont bien entrés dans la compétition, mais sont inquiets pour leurs proches.

This briefing discusses the issue of the 'Europeanisation' of the ballot papers in Member States ahead of the 2024 European Parliament elections. The European Parliament has made two recent attempts at electoral reform seeking to 'Europeanise the European elections. The second of these – still to be agreed with the Council – seeks to align electoral rules across the EU Member States. With the 2024 European elections imminent, it is useful to take a closer look at the rules as they currently stand. The focus of this briefing is the notion of the 'Europeanisation' of the electoral ballot in its narrowest sense, namely whether ballot papers used in each Member State for the European Parliament elections can include the logos and/or names of the European political parties to which the respective national political parties are affiliated. This exploration of the issue of the visibility of European political parties on the ballot papers for European elections is broken down into three parts. The first is the rationale behind and progress in the 'Europeanisation' of the European electoral process, with a particular focus on reforms geared towards showing the affiliation of national parties to European political parties on the ballot paper. The EU institutions have taken several initiatives intended to inject mutual European features into the national political processes ahead of the elections to the European Parliament. The second is a discussion of the data on European features of national ballot papers for the 2014 and 2019 European Parliament elections. The third part analyses the current state of ballot papers in all Member States, i.e. those applicable to the 2024 European elections, examining the extent to which Member States allow or forbid the visibility of European political party logos and/or names on the ballot paper for the European elections. This last section includes a synopsis of the similarities and differences between Member States. Source : © European Union, 2024 - EP

With no end in sight to the war in Ukraine, the EU has started preparing for the post March 2025 period, when temporary protection for displaced people from Ukraine ends. The Temporary Protection Directive – triggered for the first time ever in March 2022, shortly after Russia invaded Ukraine – has enabled EU Member States to offer assistance and rights to people in need of immediate protection. In principle, once the temporary protection period ends, the general laws on protection and on non-EU nationals in Member States will apply, including on return. Yet, there is a general fear that when large numbers of beneficiaries of temporary protection suddenly start seeking international protection, asylum systems risk being overwhelmed. Moreover, uncertainty about temporary protection beneficiaries' legal status might place them in a legal limbo, with potential periods of irregular residence owing to slow processing of applications for international protection. Moreover, even if eligible for refugee or subsidiary protection status, beneficiaries will not enjoy the same rights as under the Temporary Protection Directive. Academics and organisations dealing with migration management therefore agree on the urgency of finding a solution that would ensure a smooth transition out of the temporary protection regime and encourage eventual return to Ukraine. However, with the European elections taking place in June, the timing may not be ideal to amend existing EU legislation or craft new EU laws, as the legislative work in the European institutions will temporarily be put on hold. Moreover, a newly composed European Parliament and European Commission, as well as a new rotating presidency of the Council of the EU as from July, might also complicate decision-making. This briefing provides an overview of the potential exit strategies discussed by experts in the field, including the pros and cons of the most widely discussed options. Source : © European Union, 2024 - EP

Digital finance can broadly be defined as financial services and instruments that use or are based on new information and communication technologies (ICT). A wide range of segments of the financial system are therefore concerned, from digital payment services to the new market infrastructures of crypto-assets using distributed ledger technologies (DLT). Policymakers expect digital finance to benefit the financial system – for example, in terms of transaction and settlement costs, as well as financial inclusion. However, digital finance also poses new risks, especially for financial stability and the protection of citizens. The idea behind the EU regulatory approach is that by providing a sound regulatory framework, homogenous throughout the EU, these risks can be monitored and controlled, while also favouring the desired innovation. To that end, the European Commission, together with the European supervisory authorities and the European Central Bank, conduct regular reviews of the EU regulatory framework and check its ability to face these risks and the potential needs for intervention. In 2020, the Commission tabled a major digital finance strategy to provide a sound, EU-level regulatory and supervisory framework in a number of digital finance domains. The EU has already adopted new laws resulting from this initiative. The Regulation on Markets in Crypto-assets is establishing a new legal environment for DLT-based 'coins' with a stable value ('stablecoins'); another regulation will provide a framework for the monitoring and control of digital operational resilience for the financial sector. More legislative procedures are ongoing in the fields of open finance and the digital euro. New directions are being suggested, such as the establishment of a 'unified ledger', to smoothen transfers between instruments using different DLT market infrastructure. Source : © European Union, 2024 - EP

Le drame s'est produit du côté de Haumi à Moorea. Selon nos informations, trois pirogues du club de Tohivea ont chaviré en début de soirée lors d'un entraînement dans la passe d'Afareiatu. Un des rameurs est décédé.

Trois pirogues ont chaviré à Moorea : il y aurait un mort. Les secours sont sur place.