At just five months old, Ginny was diagnosed with Spinal Muscular Atrophy (SMA) — a genetic disease that destroys motor neurons and weakens muscles progressively. Ginny's parents, who wanted to be known only as Jenny and Quan, told AsiaOne on Wednesday (March 18) that she was born in September 2025 healthy with «nothing wrong». Over time, however, she barely moved her limbs and could not lift or turn her neck. When she was three to four months old, Ginny developed pneumonia and was hospitalised for 12 days at KK Women's and Children's Hospital (KKH). After returning home, the couple noticed their baby was «even weaker than before». They returned to the hospital for further checks and genetic testing. By early March, Ginny was diagnosed with SMA Type 1.Life expectancy under 2 years without treatmentJenny shared that the news came as a «big shock», considering she and her husband have no family history of the disease. Without any treatment, Ginny's life expectancy is estimated to under two years.  Read more