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An 11-month-old baby with spinal muscular atrophy (SMA) needs a Rs 14.2 crore life-saving gene therapy. The Supreme Court urged the government to provide immediate financial aid, citing a 2022 notification promising assistance for rare diseases. The child's ASC comes to rescue of infant suffering from rare disease
An 11-month-old baby with spinal muscular atrophy (SMA) needs a Rs 14.2 crore life-saving gene therapy. The Supreme Court urged the government to provide immediate financial aid, citing a 2022 notification promising assistance for rare diseases. The child's Air Force corporal father cannot afford the treatment, and the mother argued that crowdfunding within the defense sector isn't readily feasible. Read more